The Sarcoidosis Support Group Database
A Worldwide Directory of Sarcoidosis Support Groups
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Support Groups in the U.S.A.
(95 groups) (28 states)

  • CALIFORNIA
    • San Diego Sarcoidosis Support Group
      American Lung Association (meets quarterly)
      2750 Fourth Avenue
      San Diego, CA 92103
      (619) 297-3901
       
    • Sarcoidosis Clinic Univ. of Southern California Med. Ctr
      1200 North State Street
      Los Angeles, CA 90033
       
    • Sarcoidosis Network Foundation Inc
      11428 E. Artesia Blvd, Suite 10
      Artesia, California  90701
      (562) 809-8500
       
    • Sarcoid Support Group City of LaPalma Community Ctr
      7281 Walker Street
      LaPalma, CA 90623
      (714) 522-6740
       
    • Om P Sharma, MD
      USC Dept of Medicine, Health Center
      1355 San Pablo Street
      Los Angeles, CA 90033
      (213) 342-5100
       
  • COLORADO
    • Denver Sarcoidosis Awareness Support Group
      Meet on the 3rd Saturday of each month
      Contact: Shirley Holley or Leonard Holley Jr.
      (303) 375-9376 or (303) 375-9092
      supportgroup@denversarcoidosisawareness.org
       
    • National Jewish Ctr for Immunology & Respiratory Med.
      1400 Jackson Street M-222
      Denver, CO 80206
      (800) 222-LUNG (5864)
       
  • CONNECTICUT
    • National Organization for Rare Disorders (NORD)
      P.O. Box 8923
      New Fairfield, CT  06812
      (800) 999-6673 (203) 746-6518  Fax: (203) 746-6481
       

  • DELAWARE
    • American Lung Association of Delaware
      1021 Gilpin Avenue, Suite 202
      Wilmington, DE. 19806
      Contact: Tricia Monnig
      (302) 655-7258  (800) LUNG-USA (586-4872)
       
    • Arthritis Foundation, Delaware Chapter
      222 Philadelphia Pike
      Wilmington, DE.
      (302) 764-8254
       
    • Breathe For Your Life, Inc
      CCHS - Christiana Hospital
      4755 Ogletown-Stanton Road
      Newark, DE  19713
      Mailing Address: Kent Pulmonary
      938 S. Bradford Street  Dover, DE 19904
      Newark meets the 3rd Tuesday of every month 6:30pm.
      Dover meets the 2nd Wednesday of every month 6:30pm.
      Contact: Paulette Smith
      (
      302) 328-3107
      bfylinfo@breatheforyourlife.org
       
  • DISTRICT OF COLUMBIA
    • Sarcoidosis Support Group
      110 Irving St. NW. 2 NE
      Washington DC 20010
      Contact: Carol Bartlett
      (202) 877-6286  Fax (202) 877-5779
       
    • Sarcoidosis Support Group Greater S.E. Hospital
      Contact: Jeanette Ledbetter
      (202) 574-6348
       
    • Sarcoidosis Support Group ALA of DC
      475 H Street NW
      Washington DC 20001-2617
      Contact: Howard Wilson
      (202) 682-5864
       
    • Sarcoidosis Treatment Center DC General Hospital
      1900 Massachusetts Ave, SE
      Washington, DC 20003
      (202) 675-5000
       
  • GEORGIA
    • CSRA Autoimmunity and Chronic Illness Support
      217 Brooks Drive
      Martinez, GA  30907
      Meetings held on Monday nights every other month from 7:00-9:00 P.M. at the main headquarters Fire Department at 3910 Desoto Road, Martinez, Ga. 30907
      Contact:
      LeAnne Byrd or Lynne Young, RN
      (706) 863-6942
      forthebyrdsfive@bellsouth.net
       
    • Sarcoidosis Support Group of North Georgia
      Mount Pisgah United Methodist Church
      9820 Nesbitt Ferry Rd.
      Alpharetta, GA  30022-5349
      Contact: Cindy Balkstra
      (912) 844-8266
      gnapres907@dishmail.net
       
    • Support Group
      5353 Reynolds St.
      Savannah GA 31405
      Contact: Sally Deal, RN, FNP
      (912) 819-8032 or (912) 819-6209
      deals@sjchs.org
       
  • ILLINOIS
    • American Lung Association of Illinois
      3000 Kelly Lane
      Springfield, IL 62707
      Contact: Michael L. Mark B.S., R.R.T., R.N.,
      Manager, Resource Center
      800-LUNG-USA  (217) 787-5864 Fax: (217) 787-5916
      mmark@lungil.org 
       
    • Bloomington-Normal Sarcoidosis Support Group
      Sarcoidosis Research Institute SRI
      Meet at Franklin and Virginia Ave.
      Normal, IL 61761
      Contact: Dr. Eddie Glenn
      (309) 438-7884
       
    • Champaign-Urbana Sarcoidosis Support Group
      Sarcoidosis Research Institute SRI
      Meet at 1400 W Park
      Urbana, IL 61801
      Contact: Dr. Eddie Glenn
      (309) 438-7884
       
    • Chicago Southside Sarcoidosis Support Group
      Meet at Pioneer Village
      340 E. 38th Street-1st Floor Activity Room
      Chicago, IL. 60653
      Contact: Laura Harris (773) 285-2608 or
      Gwen Mitchell (773) 710-5495
      mitchell1426@sbcglobal.net

       
    • Holy Cross Hospital
      2701 West 68 Street
      Chicago, IL
       

    • Illinois Sarcoidosis Support Group, Chicago
      P.O. Box 21334
      Chicago, IL 60621
      Contact: Glenda Fulton
      (312) 288-2881
       
    • Let’s Breath Sarcoidosis Support Group
      Meet at Rush North Shore Medical Center
      9600 Gross Pointe Road
      Skokie, IL 60076
      Mailing Address: 2225 Foster Street
      Evanston IL 60201-3353
      Contact: Brenda Harris
      (847) 328-9410
      BHarris354@aol.com
       
    • National Sarcoidosis Society, Inc.
      (773) 536-7754
       
    • Peoria Sarcoidosis Support Group
      Sarcoidosis Research Institute SRI
      Meet at 1137 W Lake Ave.
      Peoria, IL 61790
      Contact: Dr. Eddie Glenn
      (309) 438-7884
       
    • Providence Cook County Hospital
      500 East 51 Street
      Chicago, IL
       
    • Sarcoidosis Support Group Champaign, IL
      Carrie Buckley
      (
      217) 356-7010
       
    • Sarcoidosis Research Institute SRI
      P.O. Box 733
      Normal IL. 61761
      Contact: Dr. Eddie Glenn
      (309) 438-7884
       
    • Springfield Sarcoidosis Support Group
      Sarcoidosis Research Institute SRI
      Meet place: 800 E. Carpenter
      Springfield, IL 62769
      Contact: Dr. Eddie Glenn
      (309) 438-7884
       
  • INDIANA
    • Central Indiana Sarcoidosis Support Group
      Kindred Healthcare Center
      1700 West 10th St.
      Indianapolis, IN  46202
      please call for directions & meeting schedule
      Contact: Robbie L. Darden & Colleen Ciampa
      (317) 335-2981
       
    • Sarcoidosis Support Group Gary Indiana
      Methodist Hospital, Respiratory Department
      600 Grant Street
      Gary, IN  46402
      Contact: Trudy Dunaway or Leatrice Freeman
      (219) 886-4644 or (219) 938-8343
       
  • KENTUCKY
    • Strength for Sarcoid Sufferers (SSS)
      Mailing Address: 106 Cedar Stream Drive
      Paris, KY 40361
      Contact: Peggy Baldridge
      (
      859) 340-4210
      pbaldridge@me.com 
       
  • LOUISIANA
    • East Jefferson General Hospital Sarcoidosis
      We meet every other month in the respiratory care conference room on the 3rd floor of the hospital.
      4200 Houma Blvd.
      Metairie, LA  70011
      Contact:  Lori Morgan Morris, R.N.
      (504) 454-4871
      lmorris@ejgh.org
       
    • Shreveport Sarcoidosis Support Group
      Meeting Address: Chistus Schumpert Health System
      One Saint Mary Place 71101
      Mailing Address: 6976 Walnut Hill Dr.
      Shreveport, LA  71129
      Contact: Rita Cooks
      (318) 687-1431
      tyrone@earth-comm.com
       
  • MARYLAND
    • Anne Arundel County Sarcoidosis Support Group
      Severna Park Library
      45 McKinsey Road
      Severna Park, MD.
      Contact: Ruth Pinder
      (410) 519-5887
      Betty Powell
      (410) 263-3123
       
    • National Information Ctr Orphan Drugs & Rare Disorders
      Orphan Products Development
      5600 Fishers Lane, Room 873 MC HF-35
      Rockville, MD 20857
       
    • Sarcoidosis Clinic
      Johns Hopkins University Hospital
      601 North Caroline St
      Baltimore, MD 21287
      (410) 955-5464
       
    • Sarcoidosis Self-Help Group
      4420 Loch Raven Blvd.
      Baltimore MD 21239
      Contact: Mathew Robinson ALA MD.
      (410) 560-2120
       

  • MICHIGAN
    • Beaumont Sarcoidosis Support
      Sponsored by Physicians of Beaumont Hospital
      20847 Bethlawn Blvd.
      Ferndale, Michigan 48220
      Contact: Victoria R. Rice
      (248) 545-0320
       
    • Ford Hospital Sarcoidosis Support Group
      Ford Hospital, West Grand Blvd.
      Detroit, MI.
      Contact: Wanda Bibbs
      (313) 916-0009
       
    • Lawrence R. Davis Foundation, Inc.
      918 Cawood
      Lansing MI 48915
      Contact: Barbara Davis
      (517) 484-7831
       
    • Sarcoidosis Assoc. of Mid-Michigan
      310 W Linden
      Carson City MI 48811
      Contact: Patti Peiffer
      (517) 584-3776  (517) 235-4370
       
    • Sarcoidosis Resource Support
      15633 West 11 Mile Road, #108
      Southfield, MI 48076
      Contact: Pamela Mullins, MA
      eves (248) 569-8091 days (313) 873-7321
       
  • MISSISSIPPI
    • Sarcoidosis Support Group Mississippi/Alabama
      539 Magazine Street
      Tupelo, Mississippi  38801
      Contact: Jessica Slaughter
      (601) 841-0984
      dangail@ebicom.net
       
  • MISSOURI
    • Cape Girardeau Missouri Sarcoid Support Group
      Southeast Missouri Hospital
      1701 Lacey Street
      Cape Girardeau, MO. 63701
      Contact: Nancy Mosley RN CPNP
      (573) 335-2229
       
    • Kansas City Sarcoidosis Support Group
      316 E. Meyer Blvd.
      5436 Garfield
      Kansas City, MO 64130
      Contact: Patricia Keeling
       
    • Midwest Sarcoidosis Foundation and Support Groups
      North Kansas City Hospital
      2790 Clay Edwards Drive
      North Kansas City, MO 64116
      Mailing: 106 Jasmine Circle, Smithville, MO 64089
      Contact: Angel Turner, Founder
      (816) 810-0880
      angelia.turner@nkch.org
      Meet the first Wednesday of each month at 7:00 on the 1st floor of the pavillion. Please join us!
       
  • NEBRASKA
    • Sarcoidosis Self Help Group
      PO Box 11204
      Omaha NE 68111
      Contact: Yolanda Benitacarr
      (402) 455-7838
       
  • NEW JERSEY
    • Deborah Heart And Lung Center
      Brown Mills, NJ 08015-1799
      (609) 893-6611, ext 547  Fax: (609) 893-3134
       
    • Jersey Shore Sarcoidosis Support
      Jersey Shore Medical Center
      Contact: Tracy
      (732) 660-0560
       

    • Lungs At Work
      East Brunswick, NJ
      Contact: Andrew Freedman
      (908) 651-7493
       
    • National Sarcoidosis Resource Center
      P.O. Box 1593
      Piscataway, NJ 08855-1593
      Contact:  Sandra Conroy
      (908) 699-0733  (908) 699-0882
      sconroy@nsrc-global.net
       
    • New Jersey Self-Help Group Clearinghouse
      375 E. McFarlan St., Dover, NJ 07801.
      Contact: Barbara White
      (973) 989-1122  (800) 367-6274  Fax: 973-989-1159
       
    • Respiratory Health Foundation
      55 Paramus Rd
      Paramus, NJ 08652
       

    • Sarcoidosis Family Aid & Medical Research Foundation
      460 Central Avenue
      East Orange, NJ 07018
      Contact: Geneva Ausley
      (201) 399-3644  (800) 203-6429
       
    • Sarcoidosis Support Group
      268 Dr. M. L. King Blvd.
      PO Box 6415
      Newark NJ 07106
      Contact: Jean Curlin-Miller
      (201) 374-7570
       
    • Sarcoidosis Support Group of Central NJ
      East Brunswick Library Civic Drive
      B-1 Brier Hill Court
      East Brunswick, NJ 08816
      Contact: Sandra Conroy
      (732) 699-0733 (732) 651-7493
      (908) 699-0154
       
  • NEW YORK
    • Mount Sinai Sarcoidosis Support Group
      One Gustave L. Levy Place
      Box 1232
      New York, NY 10029
      Contact: Pearl V. Johnson, Community Liaison
      (212) 241-8733
       
    • National Self Help Clearinghouse
      25 West 43rd Street
      New York, NY 10036
       
    • Sarcoidosis Self-Help Group
      Nassau County Medical Center
      East Meadow NY 11554
      Contact: Robert Schoenfeld
      (516) 483-2666
       
    • Self-Help Support Group
      6155 Terrace Green
      East Amhurst NY 14051
      Contact: Pat Binber
      (716) 876-3024
       
    • USA National Sarcoidosis Foundation
      P.O. Box 626
      Schenectady, NY 12301
       
  • NORTH CAROLINA
    • Sarcoidosis Awareness to Rally the Community SARC
      5F Dundas Circle, Greensboro NC
      Contact: Karen Lowe
      (336) 988-8468
      sarcofthetriad@yahoo.com
       
    • Sarcoidosis Support Group
      1002 Castle St.
      1021 Fitzgerald Dr.
      Wilmington NC 28405
      Contact: Uldridge Galloway
      (910) 395-0154
       
    • Sarcoidosis Support Group
      Raleigh, North Carolina
      Contact: Reginald Buie
      (919) 359-9010
      rsb132@msn.com
       
    • Triangle Area Sarcoidosis Support Group
      Soapstone UM Church
      12837 Norwood Road
      Raleigh, NC 27613
      Contact: Priscilla Fairley
      (919) 676-6498
      fairleyl@bellsouth.net 
       
    • University of North Carolina Sarcoidosis Support Group
      The University of North Carolina Chapel Hill Healthcare
      130 Mason Farm Road
      Chapel Hill, NC 27599
      Contact: Sharikia Burt
      (919) 966-2531  (919) 966-8833
      Sharikia_Burt@med.unc.edu
       
  • OHIO
    • Central Ohio Sarcoidosis Support Group
      Northern Lights Library
      4093 Cleveland Ave.
      Columbus, OH. 43224
      Contact: Vikki Goldstein
      (614) 645-2240
      onecincyfan@hotmail.com
       
    • Sarcoidosis Support Group of Dayton Ohio
      8910 Autumn Gates
      Huber Heights OH 45424
      Contact: Rita Waymier
      (513) 667-0062
       
    • Sarcoidosis Support Group of Southern Ohio
      PO Box 468 Cincinnati Area
      Harrison, OH 45030
      Contact: Judith L. Kay
      (812) 637-0915
       
  • OREGON
    • Sarcoidosis Networking Association
      Albany General Hospital
      1046 6th Ave. SW 4th
      floor
      Albany, Oregon.
      2nd Saturday of every month at 11:00 AM
      Contact: Kristi Anderson
      (541)-905-2092
      aghsarc@yahoo.com

       

    • Sarcoidosis Networking Association
      Providence Hospital
      4805 NE Glisan Street Room HCC6
      Portland, Oregon
      Last Saturday of every month at 12:30 PM
      Contact: Kristi Anderson
      (541)-905-2092
      aghsarc@yahoo.com

       

  • PENNSYLVANIA
    • Sarcoidosis Support Group
      725 Rollinson Road
      Hermitage, PA.  16148
      Contact: Bernadette Kutcher, D.O.
      (724) 342-4964  Fax: (724) 342-5944
       
    • Sarcoidosis Treatment & Research Center
      Thomas Jefferson University Hospital
      111 South 11th Street, Suite 4240
      Philadelphia, PA 19107-5092
      (215) 955-6590
       
  • RHODE ISLAND
    • New England Sarcoidosis Association
      298 Central Pike,
      North Scituate, RI  02857
      Contact: Michael Sweeney, Jr., RN, CMT, MA
      (401) 647-4944
      NESarcoid@juno.com
       
  • SOUTH CAROLINA
    • The Medical University of South Carolina
      171 Ashley Avenue
      Charleston, SC  29425
      Contact:  Susan D'Alessandro
      (800) 805-6614
       
    • Sarcoidosis Support Group
      McLeod Regional Medical Center
      555 E. Evans Street Room 1 C
      Florence, SC 29501
      (843) 667-2000
       
    • The Upstate Sarcoidosis Support Group, Anderson County
      Anderson County Library
      1203 White Street
      Anderson, SC  29624
      every 4th Monday 6:00pm
      Contact: Georgia Rogers
      (864) 261-9659
       
    • The Upstate Sarcoidosis Support Group, Spartanburg Co.
      Middle Tyger River Library 170 Groce Road
      Lyman, SC  29365
      every 3rd Monday 6:00p.m.
      Mailing Address: P.O. Box 2133, Spartanburg, SC  29305
      Contact: Brenay McNeil-Webb
      (864) 576-8764
       
  • TENNESSEE
    • Sarcoidosis Patient Forum
      Sarcoidosis Research Institute SRI
      3475 Central Ave.
      Memphis TN 45030
      Contact: Paula Polite
      (901) 327-5454  (901) 327-5455
       
    • Middle Tennessee Sarcoidosis Support Group
      P.O. Box 1342
      Cookesville, TN  38503
      Contact: Becky Robertson
      (931) 528-7826
       
    • The West Tennessee Sarcoidosis Support Group
      1670 McLemoresville Road
      Huntingdon, TN  38344
      (731) 986-9832
       
  • TEXAS
    • Houston Texas Sarcoidosis Support Group
      West Houston Medical Center
      12121 Richmond Ave. Room 201
      Houston, TX 77072
      Meetings: Last Saturday of every other month @ 3pm
      Contact: Emma Carroll
      (800) 846-5158
       

    • Sarcoidosis Foundation of Texas
      3501 Sycamore School Rd. Suite 125-327
      Ft. Worth Texas
      Contact: Laronda Parks, Rachella Parks Washington
      (682) 561-1516
      sarcoidtexas@sbcglobal.net  www.sfotexas.org
       

    • Janine's Sarcoid Outreach Foundation & Support Group
      P.O. Box 1008
      Alief, TX   77411
      Contact: Emma Carroll,  Executive Director
      (832) 248-6621
      sarcoidosis@jsof.org  www.jsof.org
       

    • Sarcoidosis Support Group
      El Paso, TX
      Contact: Kathrine Wilson
      (915) 857-5285
       

  • VIRGINIA
    • Sarcoidosis Self-Help Group
      American Lung Association of Northern Virginia
      9735 Main Street
      Fairfax, VA 20031
      Contact: Carolyn Thomas
      (703) 591-4131
       
    • Sarcoidosis Support Group
      704 Woodnote Lane
      Newport News VA 23608
      Contact: Beverly Moses
      (804) 988-3065
       
    • Sarcoidosis Support Group
      5349 E. Princess Anne Rd.
      Norfolk, VA 23502
      (757) 855-3059
       
  • WASHINGTON
  • WISCONSIN
    • BayCare Clinic Pulmonology
      Aurora Bay Care Medical Center
      Dr. Raul Mendoza-Ayala
      2845 Greenbrier Rd. Suite #320
      Green Bay, Wisconsin 54311
      (920) 288-8310 Fax: (920) 288-8315
      rmendoza@baycare.net

     

   

International Support Groups
(7 groups) (5 countries)

  • BELGIUM
    • Vereniging voor Sarcoïdosepatiënten
      Hilde Santermans
      UZLeuven Herestraat 49
      B-3000 Leuven, Belgium
      tel: +32 (0)16 346806
      fax +32 (0)16 346803
       
  • GERMANY
    • Deutsche Sarkoidose Vereinigung gemeinnütziger
      e.V. Bundesverband German
      Sarcoidosis Association  non-profit Association Federal Association
      Postfach 30 43 P.O.Box 30 43
      D - 40650 Meerbusch
      Tel./Fax: +49 (0) 21 50/73 60
      sarkoidose@aol.com

       
  • IRELAND
    • ISARC Irish Sarcoidosis Support Network
      Meeting Address:
      Health Centre,
      Arden Road,
      Tullamore,
      County Offaly
      Southern Ireland
      Bi-monthly Meetings held on the first wednesday

      MailingAddress:
      Isarc
      Gurtacur,
      Mount Bolus,
      Tullamore,
      County Offaly
      Southern Ireland
      Contact: Mrs. Mary Walters
      00 353 870648070
      www.isarc.ie
       
  • NORWAY
    • Sarkoidose, et mysterium!
      (Sarcoidosis, a mystery!)

      2682 Lalm  Norway
      Telefon 61232505 
      Telefaks: 61232506
      Organisasjonsnummer:
      983 871 437
      Sparebanken NOR
      1604.03.74691
      Rune B.Isaksen
      post@sarkoidose.no

       
  • UNITED KINGDOM

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 HOMEDR. DATABASESUPPORT GROUPSMESSAGE FORUMLINKSNEWSLETTERSURVEYSLIFESAVER AWARDABOUT US/CONTACT DONATIONS SEARCH