February 2010 Message Archive



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February 2010

Name: Tobias S
Email_Address: frambe@getmail.no
From: Norway
Found_Us_Via: Internet Search
Date: Wednesday, February 03, 2010
Time: 09:28 AM
Hi, I had a lung inflamation problem some years ago with fever and short breath. I took a lot of tests but it was never concluded what my problem was. They suspected Hypersensitivity pneumonitis (extrinsic allergic alveolitis) but I do not fit with the profile of people that normally get this desease (farmers and bird breeders). However, I got better and now this problem is rare. However, last 6 months I have an increasing problem with urticaria. I also sometimes get a painful version of heart burn that I find is best treated with Zyrtec. I also sometimes get swollen lips. I am questioning myself if this combination of different symptoms may indicate sarcoidosis or if it just indicates that I have unknown allergies. I am positively tested for allergy of birch pollen and bed mites, but not for any other allergy (and I did a lot of tests). Any views on this and how I can find out if I have sarcoidoses or not?

Name: Pedro de Jesus
Email_Address: pldejesus@yahoo.com
From: NYC
Found_Us_Via: A Friend
Date: Thursday, February 18, 2010
Time: 03:54 PM
I have sarcoid of the lung and lymnoids of the chest. I am looking for a Dr in New York City or North Carolina to determent if i have sarcoid of the Larynx. what is the treatment for sarcoid of the Larynx?

Name: sandydee
Email_Address: ustoowichitachapter@sktc.net
From: Wichita Ks
Found_Us_Via: Internet Search
Date: Friday, February 26, 2010
Time: 08:08 PM
I have just learned I have Sarcoidosis, after having a biopsy of the lungs. After much time on the net for natural cures and or treatments, I would like to ask if anyone has heard of or has used a product called Serrapeptase? I was first told I had stage four lung cancer, then my biopsy came back with the Sarcoid report. Please answer if you have any thing on this product Thank you Sandy

Name: Klynn G
Email_Address: kmg_215@hotmail.com
From: Washington State
Found_Us_Via: Internet Search
Date: Sunday, February 28, 2010
Time: 12:37 PM
I was diagnosed with sarcoid in August 2009. My symptoms started with sore, red lumps on my legs and sore joints. I was struggling with EVERYTHING! It got to the point that I had to ask for help to get out of bed and get dressed. I couldn't pick up my daughter(she was 1 yr at the time) and started going into depression because I felt like a failure as a mom. I was prescribed prednisone (15mg for a week, 10mg for a week then dropped to 5mg for a total of 2 months) and ibuprofen for the pain and swelling. While I was taking the meds I felt great,but once I ran out of meds the nodules on my legs started coming back and the pain came soon after. Dr. prescribed more prednisone but doubled the dosage. This time the meds lasted for about 3 months... and now everything is coming back again. I have an appointment to get a biopsy on one of the nodules on my leg next week, but I can't take my prednisone until after. My last doctor also prescribed methotrexate in conjunction with prednisone, and I have had 2 panic attacks in the last 3days. Has anyone else had a problem with panic attacks on either medicine or while taking them both?

Name: Rebecca Goutermont
Email_Address: click here to email me
From: Silver Bay, MN
Found_Us_Via: Internet Search
Date: Monday, August 24, 2009
Time: 09:21 PM
My husband was diagnosed with sarcoidosis about 7 years ago. It is sickeningly helpful to read your comments and to know we are not alone in the fatigue, aching, shortness of breath and granuloma camp. Thank you for sharing. We have a question. Has anyone had, or is it possible to develop a granuloma in the prostate? My husband had an elevated PSA, which resulted in biopsies that were negative. The ultrasound did show a possible small cyst? We just had a recheck which showed the PSA has doubled. He also occasionally has "stabbing" pain in his privates. Anyone else? Again, I thank you for sharing. Becky

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